Organization: Children's Hospital of Philadelphia
Forum: Patient engagement
At the Children’s Hospital of Philadelphia (CHOP), the Family-Centered Care (FCC) Program provides a mechanism to harness the unique experience and knowledge of patients’ carers and relatives. The Program is founded on 6 core values:
FCC informs the treatment of individual patients but is also used when designing new patient safety programs, new facilities, and new services.
In order to achieve this aim, CHOP employs Family Consultants. These are paid positions for parents of former or current patients at the hospital. Their role is to integrate the family voice and ensure that it is reflected and embedded in the work of the hospital. This is done by consulting with clinical staff on specific cases, sitting on hospital steering committees, participating in root-cause analyses, reviewing and providing feedback on hospital policy and documents, assisting workgroups on specific projects, speaking to target groups on the family perspective, and participating in simulations to help staff to improve their communication skills with patients and families.
Family Consultants are supported by Family Partners. These are volunteers who are parents or caregivers of patients at CHOP. They play important roles in providing input and reviewing information on programs, policies and initiatives across the Hospital.